As caregivers of medically complex children, many of us live in a state of constant readiness. We are waiting for test results. Monitoring symptoms. Managing medications. Watching oxygen levels. Anticipating seizures. Fighting insurance companies. Preparing for emergencies. The challenge is that trauma is often described as something that happened in the past. But for many caregivers, the traumatic event never fully ends. There is no real "post" in the PTSD. For many of us, it feels more like...

There was a time when the sound of a feeding pump haunted my sleep. I would hear it when it wasn’t even on. Phantom beeps echoing through the quiet hours of the night. If you know, you know. Feeding Tube Awareness Week isn’t just a calendar moment for our family. It’s a reflection of survival, growth, grief, gratitude, and a whole lot of love. It’s the story of how a tiny button on my daughter’s belly became one of the most powerful tools in our lives. My name is Tameka. I’m a mom, a...

As a mother to a disabled child, I know firsthand how critical accessibility and protections are for disabled individuals. But right now,...